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Aug 7th, 2015, 10:14 AM  
AliCat
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Let us know how you get on with the duloxetine HW. Always here for support if you need it x
 
Aug 9th, 2015, 23:04 PM  
Emaline 30
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Hi Ali, Just thought I'd add my two penn'orth of my life style as I have a very bad back being Spina Bifida with ankylosing spondylitis and arthritic complications which means I am in pain most days and have Meptazinol and Paracetamol that I take in regular doses and Morphine for those times it gets very bad. First thing in the mornings is the worst time and I dread having to get out of bed..
Being in pain a lot makes me very fatigued so between that and the meds it difficult to get out but I do make the effort which does help to take my mind off it a bit altho' sometimes I end up having to come home early when things start getting very bad.

I have every sympathy for all those that suffer with pain on a day to day basis for whatever reason .. I used to be very energetic and went line dancing 3-4 times a week plus I had an allotment and grew all my own veg which was great. I suppose at my age (80) I have to be grateful for any small mercies! ..
 
 
Aug 10th, 2015, 10:40 AM  
AliCat
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Welcome to our thread Emaline
How awful for you to have AS and spina bifida. You are right in saying that chronic pain is very fatiguing. Sometimes I can push through it, but other days I know that resting is my priority as it's just not going to improve. It certainly makes us stubborn and determined!
And at 80...wow...I hope I still have a positive attitude like you!
 
Aug 10th, 2015, 22:09 PM  
Emaline 30
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Thanks Ali but funny tho' as I am not a positive person at all in fact quite the opposite in most things I'm much more of a pessimist which no doubt comes from having had quite a traumatic childhood and marriage. These days it's a case of having to accept what has been dealt out in life and just get on with it. I do think that stress increases any pains we may have so much better to try to do a lot of deep breathing and relaxation as much as possible anyway.
 
 
Aug 24th, 2015, 14:25 PM  
Daniellejwx
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Just catching up with everything - I had read about taking magnesium somewhere a while back and did buy some vitabiotics containing calcium, magnesium, vitamin D and zinc, and I did take them for a little bit, then I somehow lost them, as I carry them in my handbag! But funnily enough I found them yesterday while tidying up so I've just taken one with my lunch - they're huge! So I'm struggling to take them as I'm not good with pills at the best of times, but I've learnt to just deal with it and tell myself that I do need them.

I have booked an appointment with my doctor - fingers crossed we can get somewhere. I still haven't had the physio appointment through that I was promised! Although I find that NHS physio appointments are a bit pointless and don't help much.

Although I try to rest as much as I can, I find myself in much more pain and a lot stiffer if I sit down for a long period of time, so I have to sort of drag myself up and keep moving. Maybe it affects everyone in different ways? And maybe that will change over the next few years. I'm still attempting the gym when I can after work because they burst of energy from activity at the end of the day really helps with the tiredness I've found!

Emaline - welcome! You're definitely right about stress. I'm so glad that I've left the extremely stressful job that I had at the start of the year and am in a much calmer environment. On the other hand though, my old job was a lot more fast paced, and I've got to say I don't think I was in anywhere near as much pain as I am now. Although it was a desk job, it was a massive office so I was constantly moving around to access things I needed, and also constantly having to get up to go to reception, whereas in my current job, I really only get up to get my lunch from the fridge, and to use the loo! I try to keep moving but it's so difficult!
 
 
Aug 24th, 2015, 15:03 PM  
AliCat
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Yes, sitting for too long leaves me incredibly stiff, and that includes driving. I think that's why walking is good for us. It's important to stay active without pushing our pain and energy limits too far. I find sitting at a computer makes my back, neck and shoulders really sore. I used to wear my TENS machine on a night shift but won't do that on a day shift. Voltarol gel is fairly good to rub in but you can't bathe in it lol. The condition does change over time, but you get used to adapting. Stay positive, that's probably the most helpful thing to do x
 
Aug 27th, 2015, 20:21 PM  
AliCat
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Spoke to the physio on my ward today and she's going to get me fast-tracked for physiotherapy for my back. She thinks it's a pelvic joint that's playing up, rather than a muscle. Its getting me down so hope it gets sorted soon.
 
Aug 29th, 2015, 13:02 PM  
HeavyWeight
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Hey lovelies sorry I have been AWOL for a while!

The last few weeks have not been pleasant! I can squarely blame most of it on the Duloxetine though .

Within two days of starting the meds I was really sick, and just felt particularly awul, but I perserved and the nausea stopped. THen came the increadible sweating! I woke up drenched - sorry if that is tmi I felt the whole of one week really depressed and just not quite myself either. So after three week on the meds with nno benefit my doctor took me off of them - great you think right?

Wrong! Doctor took me off without tapering the dose. Oh man the withdrawal is not pleasant, I am irritable dizzy nauseous shaking overheating and not to mention extreme pain. Lone behold after checking online there is a whole host of issues with the withdrawal of this drug and it could last months! I think doctors should really tell you these things! There have been law suits in America due to it for crying out loud - little warning next time doc!

So I am currently very sore and grouchy! But I will try to spend more time on the sight!

Sorry you haven't felt great Danielle but good on you for going to the gym. Definitely agree about physio!

I was just thinking the other day I need to take my vitamin D again soon! Thanks for re-reminding me!
 
 
Aug 29th, 2015, 19:02 PM  
AliCat
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Sorry it didn't suit you. Yes the sweats are something else, and when Dr started me straight onto 60mg I was so depressed I was suicidal. I took 2 of those tablets before giving up so well done persevering for 3 weeks. Then I tried Venlafaxine. That wasn't too bad and helped for quite a while. Then we tried the duloxetine again, 30mg this time, and I was fine. I read all about the withdrawal and had serious concerns but think I'll probably be on it for life so it won't be an issue. Goes to show we're all different and our doctors have different approaches too. Personally I'm dreading the start of autumn as I have a flare every year. But I haven't had any time off work since Feb so I must be doing something right. Hope work didn't give you too much of a hard time HW. Not everyone understands so it can be difficult. Hope you're on the mend, well, as good as you can be soon
 
Sep 8th, 2015, 23:33 PM  
AliCat
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Just feeling very low tonight and thought if I vented on here, I might feel better.
I met a friend for coffee this afternoon, who I haven't seen in months, and she asked after hubby. She knows he drinks and smokes too much. I told her he was stressed about work as usual. He was in a bad mood when he got home as he still had work to finish. Then his brother phoned and he was quite rude to him because he was tired, though they haven't spoken in months.
I feel like he gives his all to work and leaves nothing of himself for home life. It's been like this for as long as I can remember. Work comes first. I know it provides a reasonable life, but I'm so lonely. He sits in the garden when he gets home just drinking and smoking himself silly. I can't talk to him.
I just don't know what to do. I'm so sad. Its probably hormones making me feel more rubbish than usual but need to get it out of my system. Sorry folks. Don't mind me.
 
 
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